- I’m going to a different hospital three hours away.
- It’s going to be a new doctor.
- I’m going to be admitted.
- There is anesthesia.
- There is a new tube placement.
- There is a manometer placement.
- I will not be allowed to move for 24 hours.
- I have to consume 400+ calories in less than 30 mins.
- I am going to be given medicine that I showed an allergy to.
- If it’s normal than they probably won’t have much to help me.
- If it’s abnormal, they don’t have great solutions either.
- All of this in less than 48 hours…
I am going to be getting antroduodenal manometry on Wednesday. I will try to remember to take some pictures of the whole thing and write a post afterwards. Here’s the schedule:
Monday: Clears all day and drive to a hotel near the hospital for the night.
Tuesday: Get endoscopic placement of the manometry tube. Spend the day waking up. Be admitted. Try to sleep that night.
Wednesday: Bright and early they start recording. At 10 am I have to eat the 400 cals. At noon they give me a motility stimulant. At two they give me a different one. The test is over at four. The doc should tell us the results. Then they attempt to put my NJ back in. Then I get discharged. Go to the hotel and sleep overnight.
Thursday: Drive home. Be done.
A friend gave me a reusable tourniquet for starting the IV. It is pretty cool! I think these are similar: https://www.amazon.com/Hooshion%C2%AE-Emergency-Tourniquet-Activities-Multi-color/dp/B016B5QN0I/ref=sr_1_2_a_it?ie=UTF8&qid=1526170835&sr=8-2&keywords=reusable%2Btourniquet&th=1
I plan to run an odd mixture of bone broth, collagen, coconut water, and saline through my tube on Monday for some protein and to keep my sodium and fluids up. Here’s my recipe:
3 C bone broth
4 T collagen powder
1 C coconut water
1.5 C water
1 t Himalayan pink salt
That will provide me with:
51 grams of protein
2.5 gr sodium
44 ounces of water
…which is pretty good considering the fact that they are clears! (You can tell I spent a lot of time coming up with that recipe.)
I have a really awesome suitcase that I am using to hold my stuff: https://www.amazon.com/dp/B016IO9O9O/ref=twister_B0779B999Z?_encoding=UTF8&psc=1
Of course I will use another one of my awesome enfit tubes! https://www.vitalitymedical.com/corflo-ultra-lite-ng-with-enfit.html It’s the 8 FR. 43 Inch Length 3G wt w/ Stylet.
The long and short of it is that I am just incredibly nervous. I have anestesthia, radiology, new doctor, and admittance, all mixed in to just two days. The good news is, this test could bring me some answers I really need, and help find some treatment to have me feel better! (And then my nervous brain says ‘What if I get a false negative?!?’)
(That post had no spine and probably didn’t make incredibly much sense, but it was helpful to write down what I am nervous about)